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Palliative Care for Infants, Children, and Adolescents: A Practical Handbook

Brian S. Carter
4.9/5 (30178 ratings)
Description:Palliative care for terminally ill adults is receiving growing recognition as a major component in medical care. Yet far less is known or understood about the needs of infants and children with life-limiting conditions. Developed by leading researchers and practitioners from relevant disciplines, this practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume. Early chapters present the epidemiology of palliative pediatrics, ethical principles, education, and advocacy. Contributors next address the decision-making process, holistic symptom management, communication with the child and family, as well as their psychological and spiritual needs, and such issues as bereavement and caregiver suffering. Individual chapters focus on palliative care in specific settings (NICU, PICU, home, school, and community) and for major conditions (genetic disease, HIV, and cancer). Case studies discuss the experience and perspective of parents. Intended for primary care doctors, pediatric practitioners and specialists, home care nurses, hospice workers, and pastoral counselors, the book also includes a list of additional resources and support organizations for professionals and family members. Contributors Stephen R. Connor, Ph.D., Vice President, National Hospice and Palliative Care Organization, Alexandria, VirginiaLynn Czarniecki, M.S.N., C.N.S., Advance Practice Nurse, Department of Pediatrics, New Jersey Medical School, Newark, New JerseyBetty Davies, R.N., Ph.D., Professor and Chair, Department of Family Health Care Nursing, University of California at San Francisco, San Francisco, CaliforniaDeborah Dokken, M.P.A., Parent and Family Advocate, Chevy Chase, MarylandDale Evans, R.N., Ph.D., Vice President, Hospice and Community Services, Community Nursing Services, Salt Lake City, UtahChris Feudtner, M.D., Ph.D., M.P.H., Director of Research and Attending Physician for PACT (Palliative Care Team), Division of General Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PennsylvaniaW. Jeffrey Flowers, M.Div., Director of Pastoral Counseling, Medical College of Georgia Hospital and Clinics, Augusta, GeorgiaJoel Frader, M.D., Professor of Pediatrics, Medical Ethics, and Humanities, Northwestern University, Children's Memorial Hospital, Chicago, IllinoisGerri Frager, R.N., M.D., F.R.C.P.C., Medical Director, Pediatric Palliative Care Service, IWK Health Centre, Halifax, Nova Scotia, CanadaDavid R. Freyer, D.O., Associate Professor of Pediatrics and Human Development, Michigan State University College of Human Medicine; Division of Pediatric Hematology-Oncology and Bone Marrow Transplantation, DeVos Children's Hospital, Grand Rapids, MichiganSarah Friebert, M.D., Director, Division of Pediatric Palliative Care, Children's Hospital of Akron, Akron, OhioJ. Russell Geyer, M.D., Professor of Pediatrics, Division of Hematology-Oncology, Children's Hospital and Regional Medical Center, Seattle, WashingtonMary Jo Gilmer, R.N., M.B.A., Ph.D., Associate Professor of Nursing, Vanderbilt University School of Nursing, Nashville, TennesseeSam Grubman, M.D., Pediatrician, Department of Pediatrics, Saint Vincent's Hospital, New York, New YorkMaria Gudmundsdottir, R.N., Ph.D., Postgraduate Research Faculty, Department of Family Health Care Nursing, University of California at San Francisco School of Nursing, San Francisco, CaliforniaRichard Hain, M.B.B.S., M.D., M.Sc., M.R.C.P., F.R.C.P.C.H., Senior Lecturer in Paediatric Palliative Care, University of Wales College of Medicine, Llandough Hospital, Cardiff, WalesGeraldine Haynes, R.N., B.S.N., Nursing and Palliative Care Consultant, Kirkland, WashingtonRoss M. Hays, M.D., Professor, Departments of Rehabilitation Medicine and Pediatrics, University of Washington School of Medicine, and Director, Palliative Care Consulting Service, Children's Hospital and Medical Center, Seattle, WashingtonJoanne M. Hilden, M.D., Chair, Department of Pediatric Hematology-Oncology, and Medical Director, Pediatric Palliative Care, The Children's Hospital at The Cleveland Clinic, Cleveland, OhioBruce P. Himelstein, M.D., F.A.A.P., Pediatric Palliative Care Program Director, Children's Hospital of Wisconsin; Associate Professor, Division of Hematology-Oncology, Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WisconsinSteven R. Leuthner, M.D., M.A., Associate Professor of Pediatrics and Bioethics, Medical College of Wisconsin, Milwaukee, WisconsinTiffany Levinson, R.N., M.S., F.N.P., Stem Cell Transplant Nurse Practitioner, Children's Memorial Hospital, Chicago, IllinoisStephen Liben, M.D., F.R.C.P., Director, Palliative Care Program, Montreal Children's Hospital, Montreal, Quebec, CanadaYarrow McConnell, B.Sc., Student, Faculty of Medicine, Dalhousie University, Halifax, Nova Scotia, CanadaElaine Morgan, M.D., Associate Professor of Pediatrics, Department of Hematology-Oncology, Children's Memorial ...We have made it easy for you to find a PDF Ebooks without any digging. And by having access to our ebooks online or by storing it on your computer, you have convenient answers with Palliative Care for Infants, Children, and Adolescents: A Practical Handbook. To get started finding Palliative Care for Infants, Children, and Adolescents: A Practical Handbook, you are right to find our website which has a comprehensive collection of manuals listed.
Our library is the biggest of these that have literally hundreds of thousands of different products represented.
Pages
Format
PDF, EPUB & Kindle Edition
Publisher
Release
ISBN
080188005X

Palliative Care for Infants, Children, and Adolescents: A Practical Handbook

Brian S. Carter
4.4/5 (1290744 ratings)
Description: Palliative care for terminally ill adults is receiving growing recognition as a major component in medical care. Yet far less is known or understood about the needs of infants and children with life-limiting conditions. Developed by leading researchers and practitioners from relevant disciplines, this practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume. Early chapters present the epidemiology of palliative pediatrics, ethical principles, education, and advocacy. Contributors next address the decision-making process, holistic symptom management, communication with the child and family, as well as their psychological and spiritual needs, and such issues as bereavement and caregiver suffering. Individual chapters focus on palliative care in specific settings (NICU, PICU, home, school, and community) and for major conditions (genetic disease, HIV, and cancer). Case studies discuss the experience and perspective of parents. Intended for primary care doctors, pediatric practitioners and specialists, home care nurses, hospice workers, and pastoral counselors, the book also includes a list of additional resources and support organizations for professionals and family members. Contributors Stephen R. Connor, Ph.D., Vice President, National Hospice and Palliative Care Organization, Alexandria, VirginiaLynn Czarniecki, M.S.N., C.N.S., Advance Practice Nurse, Department of Pediatrics, New Jersey Medical School, Newark, New JerseyBetty Davies, R.N., Ph.D., Professor and Chair, Department of Family Health Care Nursing, University of California at San Francisco, San Francisco, CaliforniaDeborah Dokken, M.P.A., Parent and Family Advocate, Chevy Chase, MarylandDale Evans, R.N., Ph.D., Vice President, Hospice and Community Services, Community Nursing Services, Salt Lake City, UtahChris Feudtner, M.D., Ph.D., M.P.H., Director of Research and Attending Physician for PACT (Palliative Care Team), Division of General Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PennsylvaniaW. Jeffrey Flowers, M.Div., Director of Pastoral Counseling, Medical College of Georgia Hospital and Clinics, Augusta, GeorgiaJoel Frader, M.D., Professor of Pediatrics, Medical Ethics, and Humanities, Northwestern University, Children's Memorial Hospital, Chicago, IllinoisGerri Frager, R.N., M.D., F.R.C.P.C., Medical Director, Pediatric Palliative Care Service, IWK Health Centre, Halifax, Nova Scotia, CanadaDavid R. Freyer, D.O., Associate Professor of Pediatrics and Human Development, Michigan State University College of Human Medicine; Division of Pediatric Hematology-Oncology and Bone Marrow Transplantation, DeVos Children's Hospital, Grand Rapids, MichiganSarah Friebert, M.D., Director, Division of Pediatric Palliative Care, Children's Hospital of Akron, Akron, OhioJ. Russell Geyer, M.D., Professor of Pediatrics, Division of Hematology-Oncology, Children's Hospital and Regional Medical Center, Seattle, WashingtonMary Jo Gilmer, R.N., M.B.A., Ph.D., Associate Professor of Nursing, Vanderbilt University School of Nursing, Nashville, TennesseeSam Grubman, M.D., Pediatrician, Department of Pediatrics, Saint Vincent's Hospital, New York, New YorkMaria Gudmundsdottir, R.N., Ph.D., Postgraduate Research Faculty, Department of Family Health Care Nursing, University of California at San Francisco School of Nursing, San Francisco, CaliforniaRichard Hain, M.B.B.S., M.D., M.Sc., M.R.C.P., F.R.C.P.C.H., Senior Lecturer in Paediatric Palliative Care, University of Wales College of Medicine, Llandough Hospital, Cardiff, WalesGeraldine Haynes, R.N., B.S.N., Nursing and Palliative Care Consultant, Kirkland, WashingtonRoss M. Hays, M.D., Professor, Departments of Rehabilitation Medicine and Pediatrics, University of Washington School of Medicine, and Director, Palliative Care Consulting Service, Children's Hospital and Medical Center, Seattle, WashingtonJoanne M. Hilden, M.D., Chair, Department of Pediatric Hematology-Oncology, and Medical Director, Pediatric Palliative Care, The Children's Hospital at The Cleveland Clinic, Cleveland, OhioBruce P. Himelstein, M.D., F.A.A.P., Pediatric Palliative Care Program Director, Children's Hospital of Wisconsin; Associate Professor, Division of Hematology-Oncology, Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WisconsinSteven R. Leuthner, M.D., M.A., Associate Professor of Pediatrics and Bioethics, Medical College of Wisconsin, Milwaukee, WisconsinTiffany Levinson, R.N., M.S., F.N.P., Stem Cell Transplant Nurse Practitioner, Children's Memorial Hospital, Chicago, IllinoisStephen Liben, M.D., F.R.C.P., Director, Palliative Care Program, Montreal Children's Hospital, Montreal, Quebec, CanadaYarrow McConnell, B.Sc., Student, Faculty of Medicine, Dalhousie University, Halifax, Nova Scotia, CanadaElaine Morgan, M.D., Associate Professor of Pediatrics, Department of Hematology-Oncology, Children's Memorial ...We have made it easy for you to find a PDF Ebooks without any digging. And by having access to our ebooks online or by storing it on your computer, you have convenient answers with Palliative Care for Infants, Children, and Adolescents: A Practical Handbook. To get started finding Palliative Care for Infants, Children, and Adolescents: A Practical Handbook, you are right to find our website which has a comprehensive collection of manuals listed.
Our library is the biggest of these that have literally hundreds of thousands of different products represented.
Pages
Format
PDF, EPUB & Kindle Edition
Publisher
Release
ISBN
080188005X
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